Pediatric palliative care and childhood neurosurgery: reflections based on a quantitative analysis of a survey data

Authors

DOI:

https://doi.org/10.46900/apn.v6i1.227

Keywords:

Palliative Medicine, Pain, Neurosurgery, Pediatrics, Medical Education

Abstract

INTRODUCTION: In recent years, the profile of pediatric patients has changed, with the need for assistance for children living with chronic and life-threatening diseases becoming increasingly frequent. In this scenario, Pediatric Palliative Care (PPC) emerges as an integral and respectful form of assistance for these patients and their families. Understanding that neurosurgery is an extremely important area within Pediatric Palliative Care, as there are many intersections between the two areas, this research aimed to reflect on how this interaction is being carried out in practice. MATERIAL AND METHODS: It is an observational, descriptive, cross-sectional study, of survey type, in which the study population was composed of a convenience sample, using the snowball strategy. Analyses were performed with the aid of the statistical program Stata version 13.0 (Stata Corp, L. C.). Results are presented as frequencies and 95% confidence intervals, graph, and table. RESULTS: The sample represented 90 PPC services, almost all of which have physicians (97.90%). Among the medical specialties, none of the services reported having a neurosurgeon on the team. DISCUSSION: Several themes required by the National Medical Residency Commission for the training of neurosurgeons cover Pediatric Palliative Care, such as pain, bioethics, communicating difficult news and others. Therefore, the real rapprochement of the two areas is extremely important to ensure comprehensive care for the patient. CONCLUSIONS: There are important gaps between Pediatric Palliative Care and Pediatric Neurosurgery, reinforcing the importance of including the topic for neurosurgery residents and continuing education for those already trained.

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Author Biographies

Cristina Ortiz Sobrinho Valete, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil

Institution:

  1. Professora associada, Departamento de Medicina, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil
  2. Vice-líder, Núcleo de Estudos em Dor e Cuidados Paliativos, Universidade Federal de São Carlos (NEDPali UFSCar), São Carlos, São Paulo, Brasil

Maycon Rodrigo Sarracini, Centro Universitário Central Paulista (Unicep), São Carlos, São Paulo, Brasil

Institution:

  1. Graduando em Educação Física, Centro Universitário Central Paulista, (Unicep), São Carlos, São Paulo, Brasil
  2. Membro Núcleo de Estudos em Dor e Cuidados Paliativos, Universidade Federal de São Carlos (NEDPali UFSCar), São Carlos, São Paulo, Brasil

Ricardo Patrezi Zanatta, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil

Institution:

  1. Graduando em Medicina, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil
  2. Membro Núcleo de Estudos em Dor e Cuidados Paliativos, Universidade Federal de São Carlos (NEDPali UFSCar), São Carlos, São Paulo, Brasil

Lucas Pereira Liberal, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil

Institution:

  1. Graduando em Medicina, Universidade Federal de São Carlos (DMed UFSCar), São Carlos, São Paulo, Brasil
  2. Membro Núcleo de Estudos em Dor e Cuidados Paliativos, Universidade Federal de São Carlos (NEDPali UFSCar), São Carlos, São Paulo, Brasil

Maria Sagrario Gomez-Cantarino, Universidad de Castilla-La Mancha, Toledo, Espanha

Institution:

  1. Profesora titular, Facultad de Fisioterapia y Enfermería, Universidad de Castilla-La Mancha, Toledo, Espanha

Additional Files

Published

2024-01-08

How to Cite

1.
Luiz Ferreira EA, Sobrinho Valete CO, Sarracini MR, Zanatta RP, Liberal LP, Gomez-Cantarino MS. Pediatric palliative care and childhood neurosurgery: reflections based on a quantitative analysis of a survey data. Arch Pediatr Neurosurg [Internet]. 2024 Jan. 8 [cited 2024 Feb. 27];6(1):e2272023. Available from: https://archpedneurosurg.com.br/sbnped2019/article/view/227